Charise, A Woman With Huntington’s Disease Who Changed The World: Her Poetry and Memoir

This memoir recounts the extraordinary life of Charise Pfeffer, who faced the devastating diagnosis of Huntington’s Disease with courage, grace, and purpose. A life of service, adventure and leadership. She changed the world. Two years as a Peace Corps Volunteer teaching English and self-esteem to children in Turkmenistan, teaching children in Thailand, a volunteer in Israel teaching foster children. This memoir recites Charise’s poetry—eloquent, raw, and insightful reflections that reveal her inner world and the strength she found in being “The Disabled Other.” Her words do not dwell on injustice; rather, they uplift and empower, speaking to the resilience of the human spirit. Learn how her love and devotion inspired and energized her Dad to make an important choice to honor her, to advocate ardently for the HD community to make it better for current survivors. Losing a child to an incurable illness is one of the most profound losses a parent can endure. Yet, in the midst of that heartbreak, Charise’s story offers hope and inspiration—not only for those living with a terminal diagnosis but for anyone seeking meaning in adversity. From a young age, she knew she was at risk of a shortened life, yet she chose to live each day with joy, intention, and impact.

ASIN ‏ : ‎ B0FHY7VBHX
Publisher ‏ : ‎ Independently published
Publication date ‏ : ‎ July 21, 2025
Language ‏ : ‎ English
Print length ‏ : ‎ 133 pages
ISBN-13 ‏ : ‎ 979-8292650683
Item Weight ‏ : ‎ 9.1 ounces
Dimensions ‏ : ‎ 6 x 0.3 x 9 inches
Best Sellers Rank: #17,559 in Books (See Top 100 in Books) #13 in Social Services & Welfare (Books) #21 in Death, Grief & Loss Poetry (Books) #1,044 in Memoirs (Books)