Can You Help Me?: Inside the Turbulent World of Huntington Disease
Original price was: $22.99.$9.99Current price is: $9.99.
Can You Help Me?: Living in the Turbulent World of Huntington Disease shares the surprising, insightful, challenging, and even encouraging stories of patients and their families who live with Huntington Disease. Having seen patients for more than 40 years, Dr Thomas Bird, a pioneer neurogeneticist, adds a human touch to this genetic brain disease that devastates persons during mid-life when they can least afford it.
With a brief history of Huntington Disease and the occasional scientific detail, the true heart of the book is the human experience of the disorder:
· The man who cannot stay out of prison because he is addicted to being a burglar.
· Another man shoots and kills his roommate while watching television and cannot explain why he did it.
· The woman with Huntington Disease copes with her depression by using Texas line dancing.
· A twelve year old girl with juvenile Huntington Disease who can barely walk and talk, but her classmates rally around with touching and heartfelt support.
· And the 72 year old man with late onset Huntington Disease and severe depression is made worse by ECT, but improved (for a while) with Transcranial Magnetic Stimulation.
These are just some of the compelling stories of people of all ages and in all walks of life who feel trapped by a progressive degenerative brain disease from which there is no escape.
ASIN : B07MTF485R
Publisher : Oxford University Press
Accessibility : Learn more
Publication date : February 1, 2019
Edition : 1st
Language : English
File size : 3.2 MB
Screen Reader : Supported
Enhanced typesetting : Enabled
X-Ray : Not Enabled
Word Wise : Not Enabled
Print length : 284 pages
ISBN-13 : 978-0190684242
Page Flip : Enabled
Best Sellers Rank: #1,171,284 in Kindle Store (See Top 100 in Kindle Store) #388 in Neurology (Kindle Store) #519 in Neuropsychology (Kindle Store) #624 in Medical Neuropsychology
Customer Reviews: 4.8 4.8 out of 5 stars 61 ratings var dpAcrHasRegisteredArcLinkClickAction; P.when(‘A’, ‘ready’).execute(function(A) { if (dpAcrHasRegisteredArcLinkClickAction !== true) { dpAcrHasRegisteredArcLinkClickAction = true; A.declarative( ‘acrLink-click-metrics’, ‘click’, { “allowLinkDefault”: true }, function (event) { if (window.ue) { ue.count(“acrLinkClickCount”, (ue.count(“acrLinkClickCount”) || 0) + 1); } } ); } }); P.when(‘A’, ‘cf’).execute(function(A) { A.declarative(‘acrStarsLink-click-metrics’, ‘click’, { “allowLinkDefault” : true }, function(event){ if(window.ue) { ue.count(“acrStarsLinkWithPopoverClickCount”, (ue.count(“acrStarsLinkWithPopoverClickCount”) || 0) + 1); } }); });
8 reviews for Can You Help Me?: Inside the Turbulent World of Huntington Disease
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Original price was: $22.99.$9.99Current price is: $9.99.
John Bailey –
Helpful for me learning about HD
This book is very good. I’m new to the world of HD and it gave me lots of information (the good and the bad) and perspective.
Holly Gray –
Great book
This book is great! If HD runs in ur family, I highly recommend. It talks about history of disease, what it is in comparison to other brain diseases and gives patient accounts. I really like this book
Jerry K –
Like Oliver Sacks’ Vignettes but with a Deeper Explanation of the Brain
These stories of people with Huntington Disease, told by a warm and understanding doctor, gave me a new understanding of the human toll on the patients and their families. It also helped me see the many different ways that HD affects behavior.Some readers may choose to skip the first 30 pages, which describe HD and how it differs from other brain diseases, but I found this section to be a helpful introduction for the layperson who knows little or nothing about HD. I would recommend this book to curious readers interested in the mysteries of the brain and those close to someone who has been diagnosed with Huntington Disease.
Diamonds –
Descriptions of HD in wide range
Probably the most frustrating aspect of the disease, and as a result partially this is true for the book as well, is that there seems to be very little to none help in the offering in terms of reversing, stopping this cruel disease, at this time, although there is hope, as the author lists near the end, a page – long list of developments. At the time of writing this review the 2-year long phase 3 trial for Tominersen has just started, which has been elsewhere described as being able to stop the degenerative process that slowly wrecks part of the patient’s brain. The book then, is a long record of short medical histories of patients, in which patterns and profiles start to become recognizable after a while. How a doctor could work with this disease and its patients, families, for 40 years, is beyond me, as it seems that there was very little that they could do, beyond diagnosis, and prescription of drugs to mediate symptoms, assist as forensic specialist in court cases, etc. For someone who has no idea about this disease, this book is a deep dive, a fast course in what to expect and try to be prepared for, and leaves one probably not without some level of desperation. Perhaps some of the more inspiring and uplifting aspects of the stories is the fact that some personal related caregivers find creative ways of supporting their loved ones through this most cruel ordeal of end of life scenario, as well as, for some, find comfort in knowing that onset age varies and depends on the pertaining genes. Definitely the younger, the more dramatic and cruel in nature, per the descriptions in the book. If you have to educate yourself quickly, as I did, due to a friend’s sudden diagnosis, then it is currently probably one of your best choices, but take it in measures; you can’t read this through at once, you have to put this down now and again (ie read part each day for half an hour).
Bill B. –
Great read!
Price reasonable and shipping fast and accurate. Product works excellent
Phyllis Tyson –
good read
easy to read, flows like a well written novel. this volume should be in the library of every family who may be touched by Huntington’s disease, and every physician who may see a person with Huntington’s disease
ross429 –
Book about Huntington’s Disease
Excellent information on Huntington’s Disease. Not too clinical for the layman, but does have tons of information on the subject.
wants and needs –
Not too many Hd books out there
Great book