I Hate Muscular Dystrophy Loving a Child with a Life-Altering Disease
$14.97
Is it possible to face unexpected challenges with strength, grace and personal power?
I Hate Muscular Dystrophy: Loving a Child with a Life-Altering Disease proves that it is possible.
This authentic story speaks to the strength and resolve of a mother who believes that life is to be lived and celebrated, despite the realities of any real or perceived limitations.
A handbook for any person loving a child with special needs, this book teaches the importance of embracing the full spectrum of emotions – the love and the hate – that life presents when faced with unexpected challenges, particularly that of a chronic illness.
Publisher : Blackcurrant Press Company
Publication date : May 11, 2011
Language : English
Print length : 120 pages
ISBN-10 : 0981711189
ISBN-13 : 978-0981711188
Item Weight : 6.1 ounces
Dimensions : 6 x 0.25 x 9 inches
Best Sellers Rank: #1,409,145 in Books (See Top 100 in Books) #762 in Musculoskeletal Diseases (Books) #11,612 in Parenting (Books)
Customer Reviews: 4.2 4.2 out of 5 stars 13 ratings var dpAcrHasRegisteredArcLinkClickAction; P.when(‘A’, ‘ready’).execute(function(A) { if (dpAcrHasRegisteredArcLinkClickAction !== true) { dpAcrHasRegisteredArcLinkClickAction = true; A.declarative( ‘acrLink-click-metrics’, ‘click’, { “allowLinkDefault”: true }, function (event) { if (window.ue) { ue.count(“acrLinkClickCount”, (ue.count(“acrLinkClickCount”) || 0) + 1); } } ); } }); P.when(‘A’, ‘cf’).execute(function(A) { A.declarative(‘acrStarsLink-click-metrics’, ‘click’, { “allowLinkDefault” : true }, function(event){ if(window.ue) { ue.count(“acrStarsLinkWithPopoverClickCount”, (ue.count(“acrStarsLinkWithPopoverClickCount”) || 0) + 1); } }); });
9 reviews for I Hate Muscular Dystrophy Loving a Child with a Life-Altering Disease
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Otis G. –
WOW!!
Through Star’s excellent writing I was privileged to be allowed a glimpse into her and Marks’ life living with a growing special needs child. I don’t have a special needs child so I can’t say that I understand what they go through day to day, but reading this book I could feel the emotional roller-coaster she rode as she grew past her earlier “very raw, real, non-politically correct feelings” to being able to answer the “Why Me?” question I’m sure we’d all ask in her position. It is my belief that as Star, grew with her son and Duchenne Muscular Dystrophy (DMD) she found her “Life Purpose”.What an excellent Read!!!!
Dark Knight –
Impressive Voice of Parent w/ Special Needs Child
Excellent writing of a very personal journey. Impressed and a little scary with the openness of the very talented author. Highly recommended for anyone, especially parents dealing with a special needs child. This covers a wide range of internal thoughts and feelings.
wkrpification –
very honest.
this sbook is a really honest look into what the author, and any other parents migh go through once their child has been diagnosed with an incurable disease. and while it helps to validate all the outrageous things youre feeling, she also offers exercises to assist with the coping process. i would definitely suggest this book to other parents in similar situations.
Reba –
Four Stars
good
Troy of AALBC . com –
Loving a Child with a Life-Altering Disease
Unless your life has somehow been touched by Muscular Dystrophy (MD) directly, the only time you probably think about the disease is during the Labor Day Telethon hosted annually by Jerry Lewis since the mid-Sixties.For this reason, may I suggest that, before tuning in to this year’s fundraiser, you read I Hate Muscular Dystrophy: Loving a Child with a Life-Altering Disease. Half-heartfelt memoir/half how-to primer, the book was written by Star Bobatoon whose son, Hurricane, was diagnosed with Duchenne Muscular Dystrophy (DMD) in 2001 at the tender age of 5.Eventually, the author came to make peace with the “exasperating characteristic” of DMD, having learned how to overcome depression in the face of his dire prognosis, Ms. Bobatoon lays out a 4-point plan, augmented by exercises and affirmations, for other families struggling to come to grips with MD or any other seemingly all-consuming affliction.Read the full review and more book reviews from AALBC.com on your Kindle Edition
Harold King –
Joy cometh in the morning
I Hate Muscular Dystrophy is not just a book about a mother’s love but also a useful guide. The author shares her pain, her insecurities and also their moments of joy as she discovers all trials and tribulations must have a divine purpose. It is the remarkable testimony of what a mother’s love, determination and faith can accomplish in spite of overwhelming challenges. I really enjoyed this book and recommend it to anyone… and especially those of us who loves “a child with a life – altering disease. A must read!
VickyB –
Applause is Deserved
While I do not have a child with MD, I could still identify with the author’s story. I laughed and cried because this book is so honest. Star Bobatoon deserves applause for this refreshingly personal account. I recommend purchasing multiple copies of this book and handing them out as gifts…I believe it would serve that purpose to those who love a child with a life-altering disease. Thank you for sharing!
kathy –
Honest Help
This book is written from such an honest place it made me cry.Star shares her many wonderful tips and advice that she learned from her own life (like the S.T.A.R. principal) to help anyone dealing with a child with a life altering disease.She also shares her mistakes showing all of us that we can dig down deep and get the courage to make a better life for the whole family.I wish her much success in helping families around the world in the future.
Amazon Customer –
Amazing book….