On Living While Dying: A Decade with ALS
Original price was: $2.99.$1.99Current price is: $1.99.
Sometime during 2013, I became aware of my first symptoms.
I was diagnosed in March 2015. I rushed to finish the book I was writing since my retirement in March 2011. Under a perceived shortage of time, I decided to self-publish. The book was out by mid-2016. By early 2018, I was getting restless. I started writing again. Naturally, much of what I wrote concerned my experiences with ALS. Having learned how to publish a book, I indulged myself. I have now three more. While reading posts from sufferers of ALS, whether patients or care-givers, I concluded that there might be benefits if I made my writings more accessible. So, I gathered the relevant chapters from the three books, added a preamble and some final notes and went “to press”.
For a small but very special audience.
May some find help.
ASIN : B0BSS2SYFT
Publisher : P.J. Bear
Accessibility : Learn more
Publication date : January 20, 2023
Edition : 2nd
Language : English
File size : 2.2 MB
Screen Reader : Supported
Enhanced typesetting : Enabled
X-Ray : Not Enabled
Word Wise : Enabled
Print length : 101 pages
ISBN-13 : 978-1088085660
Page Flip : Enabled
Best Sellers Rank: #1,867,508 in Kindle Store (See Top 100 in Kindle Store) #19,356 in Occult (Kindle Store) #69,416 in Self-Help (Kindle Store) #97,212 in Health, Fitness & Dieting (Kindle Store)
Customer Reviews: 4.6 4.6 out of 5 stars 6 ratings var dpAcrHasRegisteredArcLinkClickAction; P.when(‘A’, ‘ready’).execute(function(A) { if (dpAcrHasRegisteredArcLinkClickAction !== true) { dpAcrHasRegisteredArcLinkClickAction = true; A.declarative( ‘acrLink-click-metrics’, ‘click’, { “allowLinkDefault”: true }, function (event) { if (window.ue) { ue.count(“acrLinkClickCount”, (ue.count(“acrLinkClickCount”) || 0) + 1); } } ); } }); P.when(‘A’, ‘cf’).execute(function(A) { A.declarative(‘acrStarsLink-click-metrics’, ‘click’, { “allowLinkDefault” : true }, function(event){ if(window.ue) { ue.count(“acrStarsLinkWithPopoverClickCount”, (ue.count(“acrStarsLinkWithPopoverClickCount”) || 0) + 1); } }); });
2 reviews for On Living While Dying: A Decade with ALS
Add a review
Related Products
Original price was: $2.99.$1.99Current price is: $1.99.
S. Gregg –
An inspirational story of resilience
John’s story is an inspiration to anyone who has received a devastating diagnosis. He faced the future with will, determination, and resilience, and found a new purpose in writing. Words matter, and they matter exponentially when they are all you have. The sharing of your struggles for others in similar situations, the sharing of your life experiences with your family and friends, and the sharing of your thoughts and opinions for your own feeling of purpose, all matter. I own the Kindle and paperback copy of this book and have gifted it to others in similar situations as a hope of encouragement and comfort for them.
Laurence H. Wood –
ALS – Help Me! I can’t . . . .
John wrote, “May some find help”. What do you do when you can’t turn on a light switch, open a door, turn on the faucet to get a drink, feed yourself, communicate with your helpers? These are some of the challenges John shares in his jounrey with ALS, or as he writes, “On Living While Dying”. While John wrote, “For a small but very special audience”, his audience may be bigger than he expected.John’s book touches accurately on the challenges and struggles of living with ALS. While reading John’s book, my wife experienced about 10 minor strokes one night while sleeping, leaving her now dependent on myself and the staff in a long-term care facility who provide total care for her. In many ways, our situation is eerily similar to John’s. Total dependence for the little things in daily life is something we take for granted until we can’t feed ourselves, clothe ourselves, move without help, communicate our simple, daily needs. Think about that for a moment.This is a book for anyone who works with folks who have ALS, be they professionals or family members. A book for anyone with a friend or family member who is totally dependent on someone.