A Guide to Duchenne Muscular Dystrophy

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The prognosis for individuals with Duchenne Muscular Dystrophy (DMD) is improving, with some men with DMD living into their 30s and 40s. More vital than ever, this book helps teachers and parents to support children and young people with DMD with their education and transition into adulthood.

Leading experts on DMD explain Duchenne and its impact in easy-to-understand terms. Going beyond physical management, particular focus is put on learning and behavioural issues, including speech delay and difficulty learning to read, as well as common comorbid conditions, such as ADHD, autism and OCD. Raising aspirations, the book gives guidance on effective support in the classroom and advice on the transition to adulthood, employment and independent living.

Publisher ‏ : ‎ Jessica Kingsley Publishers
Publication date ‏ : ‎ December 14, 2017
Edition ‏ : ‎ 1st
Language ‏ : ‎ English
Print length ‏ : ‎ 232 pages
ISBN-10 ‏ : ‎ 1785921657
ISBN-13 ‏ : ‎ 978-1785921650
Item Weight ‏ : ‎ 11.2 ounces
Dimensions ‏ : ‎ 5.98 x 0.53 x 9.02 inches
Best Sellers Rank: #1,141,630 in Books (See Top 100 in Books) #296 in Teen Health (Books) #613 in Musculoskeletal Diseases (Books) #1,055 in Health Care Delivery (Books)
Customer Reviews: 4.8 4.8 out of 5 stars 30 ratings var dpAcrHasRegisteredArcLinkClickAction; P.when(‘A’, ‘ready’).execute(function(A) { if (dpAcrHasRegisteredArcLinkClickAction !== true) { dpAcrHasRegisteredArcLinkClickAction = true; A.declarative( ‘acrLink-click-metrics’, ‘click’, { “allowLinkDefault”: true }, function (event) { if (window.ue) { ue.count(“acrLinkClickCount”, (ue.count(“acrLinkClickCount”) || 0) + 1); } } ); } }); P.when(‘A’, ‘cf’).execute(function(A) { A.declarative(‘acrStarsLink-click-metrics’, ‘click’, { “allowLinkDefault” : true }, function(event){ if(window.ue) { ue.count(“acrStarsLinkWithPopoverClickCount”, (ue.count(“acrStarsLinkWithPopoverClickCount”) || 0) + 1); } }); });

4 reviews for A Guide to Duchenne Muscular Dystrophy

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  1. C. Estby

    Excellent resource
    As a Duchenne parent, I have spent a lot of time over the last many years looking for resources that are up-to-date, helpful and practical. There aren’t many. This is one. Really a good resource for Duchenne families.

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  2. Cat

    I have found this book to be an invaluable source of information on DMD. It is an accessible and extremely insightful guide that you will certainly refer to again and again. I highly recommend this book to anyone affected by DMD and those who support individuals affected by the disorder.

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  3. Dannielle

    This book is an essential if you are a parent/teacher/family member with a DMD child I’m so happy there is a book like this and arrived a day earlier

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  4. Kerry Jacobs

    As a parent this has become my Duchenne bible. So informative. Thank you

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    A Guide to Duchenne Muscular Dystrophy
    A Guide to Duchenne Muscular Dystrophy

    $23.95

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