ALS: An Orientation
$9.99
Eliot H. Dunsky, MD, is a retired physician who since his diagnosis in 2009 has been living with ALS, the complex, progressively debilitating disorder commonly known as Lou Gehrig’s disease. Determined to maintain the best quality of life possible—for as long as possible—he extensively researched the condition and its management.
As he immersed himself, talking to ALS patients and exploring emerging assistive technologies and aids, he realized that misunderstanding of this complicated disease was rife, preventing many from making the most of the precious years left.
The result is this compilation of not only his personal experiences as his own condition advanced but also current research and links to additional specialized resources. Its aim is to help other patients learn to live with their diagnosis and navigate the day-to-day struggles associated with it.
Appropriate symptom management can help fend off the devastating effects of the disease for a longer period of time. ALS: An Orientation offers a practical guide for patients and their families on maximizing quality of life through strategic care and, importantly, coping with the emotional toll the disease can take. A terminal diagnosis simply means savoring to the fullest the life that is still possible.
ASIN : B01N75ADZ0
Publisher : create space
Accessibility : Learn more
Publication date : November 14, 2016
Language : English
File size : 5.7 MB
Simultaneous device usage : Unlimited
Screen Reader : Supported
Enhanced typesetting : Enabled
X-Ray : Not Enabled
Word Wise : Enabled
Print length : 341 pages
ISBN-13 : 978-1534988668
Page Flip : Enabled
Best Sellers Rank: #449,947 in Kindle Store (See Top 100 in Kindle Store) #39 in Nursing Long-Term Care #354 in Biographies of Medical Professionals (Kindle Store) #694 in Medical Professional Biographies
Customer Reviews: 4.6 4.6 out of 5 stars 83 ratings var dpAcrHasRegisteredArcLinkClickAction; P.when(‘A’, ‘ready’).execute(function(A) { if (dpAcrHasRegisteredArcLinkClickAction !== true) { dpAcrHasRegisteredArcLinkClickAction = true; A.declarative( ‘acrLink-click-metrics’, ‘click’, { “allowLinkDefault”: true }, function (event) { if (window.ue) { ue.count(“acrLinkClickCount”, (ue.count(“acrLinkClickCount”) || 0) + 1); } } ); } }); P.when(‘A’, ‘cf’).execute(function(A) { A.declarative(‘acrStarsLink-click-metrics’, ‘click’, { “allowLinkDefault” : true }, function(event){ if(window.ue) { ue.count(“acrStarsLinkWithPopoverClickCount”, (ue.count(“acrStarsLinkWithPopoverClickCount”) || 0) + 1); } }); });
Amelia Pais –
I wish I read this when we first got diagnosed with ALS
This is a warm and comprehensive guide to living with ALS. My husband was diagnosed in 2016 and frankly we didn’t have a clue of what the future would entail. Practical and insightful advice abounds in this book. The author has done a great job of describing so many of the challenges of this disease and provided many potential ways to overcome those that can be overcome. Well worth a read. But hope you never have to!
Ronnie Collins –
I have heard of ALS for years but never had a real understanding of its ramifications.
I have heard of ALS for years but never had a real understanding of its ramifications. This book is very helpful in helping those diagnosed with ALS to make good decisions regarding their care. It is a good resource also for family and loved one affected by ALS. I would definitely recommend this book as a good place to start to better understand this medical situation.
Joesph –
Living and coping with Als
Just had a family diagnosis with this disease which I knew nothing about. This explained everything , the disease process, the medical team involved, equipments need but most of all preparing in all facets of the process for client and caregiver.
Curtis J Lohr –
Good overview
This book provides an excellent overview on what to expect once diagnosed with ALS. The authors personal experience as described in the final chapter is helpful and encouraging.
Richard H –
Compassionate mind sharing his expansive knowledge of dealing with ALS
Cogent and practical chapters on dealing with the challenges that unfold with the disease. Many links to internet resources, some stale but most with vital information. The author’s optimism in the face of his experience of the disease is heartening. As a caregiver I will refer back to this book often.
Bob –
Best information about ALS.
Helped with understandings what ALS does to the human body. We had a family friend who suffer with ALS who decided to end his suffering in the last weeks of his life by not eating or taking nourishment. He past away in April.
Lynne Grubb –
Dissapointing
I was hoping to learn something new, this book would be good for people that have just been diagnosed.
Philo Jazz –
Good info, and a personal view.
Sometimes a bit repetitive, but easy to read and comprehend. Perhaps supplement it with another more detailed book.
Fluffynymph –
As one who is in the early stages of the als journey, my mind full of questions, I find this is the book I have been looking for. Not only does Dr Dunski addresss all the issues that will arise, and answer most of the questions, but he has filled his book with links to many other sites. He is writing not only from his own personal experience, but as a scholar who has done an exratraordinary amount of research. It is very readable for the ordinary person too.just what someone in my position needs, and I will be eternally grateful to him.
Blackeyes –
Nothing you can’t google. Boring and basically he’s summarized the als sites he’s read. I was disappointed and unable to finish the book. At least it was cheap.