Grandma Has Huntington’s Disease and It’s Okay (Beautifully Unique Book 1)
Original price was: $13.95.$6.97Current price is: $6.97.
This book tells the story of a grandmother who has Huntington’s disease, a genetic condition, from the perspective of her grandson, Leo. Huntington’s Disease affects 5 to 7 people in every 100,000 people of European ancestry, and also affects people of some other ancestries but less frequently. This book is intended to serve as a way to communicate with children about Huntington’s Disease, and help children understand what it means for them and their family member affected by Huntington’s Disease.
ASIN : B08C6HQ91W
Accessibility : Learn more
Publication date : June 30, 2020
Language : English
File size : 20.4 MB
Simultaneous device usage : Unlimited
Enhanced typesetting : Not Enabled
X-Ray : Not Enabled
Word Wise : Not Enabled
Format : Print Replica
Page Flip : Not Enabled
Grade level : Preschool – 5
Book 1 of 6 : Beautifully Unique
Reading age : 2 – 10 years
Best Sellers Rank: #2,436,599 in Kindle Store (See Top 100 in Kindle Store) #640 in Children’s Nonfiction Family Life Books #937 in Children’s Nonfiction Social Issues #11,029 in Children’s Family Life Books (Kindle Store)
Customer Reviews: 4.6 4.6 out of 5 stars 18 ratings var dpAcrHasRegisteredArcLinkClickAction; P.when(‘A’, ‘ready’).execute(function(A) { if (dpAcrHasRegisteredArcLinkClickAction !== true) { dpAcrHasRegisteredArcLinkClickAction = true; A.declarative( ‘acrLink-click-metrics’, ‘click’, { “allowLinkDefault”: true }, function (event) { if (window.ue) { ue.count(“acrLinkClickCount”, (ue.count(“acrLinkClickCount”) || 0) + 1); } } ); } }); P.when(‘A’, ‘cf’).execute(function(A) { A.declarative(‘acrStarsLink-click-metrics’, ‘click’, { “allowLinkDefault” : true }, function(event){ if(window.ue) { ue.count(“acrStarsLinkWithPopoverClickCount”, (ue.count(“acrStarsLinkWithPopoverClickCount”) || 0) + 1); } }); });
6 reviews for Grandma Has Huntington’s Disease and It’s Okay (Beautifully Unique Book 1)
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Original price was: $13.95.$6.97Current price is: $6.97.
Kindle Customer –
Explaining HD to Kids
My family has members with HD. This book is very clear about the different aspects of HD. It includes the fact that there can still be lots of love. Excellent book.
Carol Wocelka –
Very well written.
I think this book could really help children understand why Grandma’s body has movement that they don’t have. And it also helped me understand Hunnington’s Disease better!
S. M. Hayes –
Barely scratches the surface
While sweet, this is not a very realistic portrayal of families living with HD. Most are dealing with physical, mental, and financial challenges. The person with HD is usually very ill, requiring lots of care, and most families don’t have a nurse or caregiver to help. Each child of the affected parent has a 50% chance of inheriting the disease, so either Mom or Dad is also at risk and may already know his/her genetic status, and if positive, is facing not being able to work, becoming totally dependent on others, and, eventually death, since there’s no cure. Yes, there’s still lots of love, but there are lots of difficulties to navigate that can be very hard for a child growing up in a home with HD.
Kindle Customer –
Awesome thanks
Enjoyable to read and easy to understand. Make the job of communicating this information easier. Thank you for writing this.
Amazon Customer –
Much needed book
Excellent book to facilitate difficult discussions with children about a family member with Huntington’s. Well written with great illustrations!
emma terranova –
This is such a lovely book and I wish I’d had it as a child! My mum has HD. It’s so lovely how is reminds you on every page that you are loved. Brilliant