Prism: Shedding Light on Life with Duchenne
Original price was: $15.99.$8.79Current price is: $8.79.
In this refreshingly relatable memoir, David K. humanizes the experience of life with Duchenne muscular dystrophy. His many poignant recollections act as a prism, making the invisible visible, and demystifying the reality of having this neuromuscular disease. Among his many experiences:•Being a “normal” college student: living away from home, staying in a dorm, learning independence, partying •Confronting his early mortality at the age of 13, and being entirely unprepared to deal with it•Kissing a girl for the first time at age 19, and realizing that women could indeed be interested in someone with a severe disability •Learning he needed a ventilator the hard way: nearly suffocating when out with friends, and rushing home in a panicDavid does not sugarcoat anything, nor does he spout a lot of empty inspirational rhetoric. All he does is peel back the curtain and show what it’s really like to live with a disability.
Publisher : Medshoppe
Publication date : July 9, 2021
Language : English
Print length : 272 pages
ISBN-10 : 1736646303
ISBN-13 : 978-1736646304
Item Weight : 12.4 ounces
Reading age : 13 – 18 years
Dimensions : 5.5 x 0.62 x 8.5 inches
Best Sellers Rank: #1,504,479 in Books (See Top 100 in Books) #729 in Musculoskeletal Diseases (Books) #1,209 in Biographies of People with Disabilities (Books) #32,117 in Memoirs (Books)
Customer Reviews: 4.9 4.9 out of 5 stars 52 ratings var dpAcrHasRegisteredArcLinkClickAction; P.when(‘A’, ‘ready’).execute(function(A) { if (dpAcrHasRegisteredArcLinkClickAction !== true) { dpAcrHasRegisteredArcLinkClickAction = true; A.declarative( ‘acrLink-click-metrics’, ‘click’, { “allowLinkDefault”: true }, function (event) { if (window.ue) { ue.count(“acrLinkClickCount”, (ue.count(“acrLinkClickCount”) || 0) + 1); } } ); } }); P.when(‘A’, ‘cf’).execute(function(A) { A.declarative(‘acrStarsLink-click-metrics’, ‘click’, { “allowLinkDefault” : true }, function(event){ if(window.ue) { ue.count(“acrStarsLinkWithPopoverClickCount”, (ue.count(“acrStarsLinkWithPopoverClickCount”) || 0) + 1); } }); });
10 reviews for Prism: Shedding Light on Life with Duchenne
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Original price was: $15.99.$8.79Current price is: $8.79.
Jill Von Fumetti –
Helpful Guide to Life with Disability From A Mentor
This book by David K. is an account of his obstacles and triumphs in regards to living with Duchenne Muscular Dystrophy. He chronicles the discovery that he has a shorter life expectancy, to building a elevator in his Catholic school, to meeting Jim Carrey, to his search for an accessible university and his ability to have a to have a “normal” college experience, even successfully planning a spring break vacation with his college buddies. David tells his story in such a relatable manner! It is also a reminder that we all have difficulties, but we all find a way to persevere through them, and David is no exception! Prism is genuinely an exceptional book for those with and without disabilities! Reading this book was a very heartwarming experience! I can’t wait to see what’s in store for this incredible author!
Peter Floess –
An readable and entertaining book
David K.’s 2021 memoir, Prism: Shedding Light on Life with Duchenne is an excellent memoir about his life with Duchenne muscular dystrophy (DMS). One of the main parts of the book is about David K.’s life in the Roberts program at a Midwestern University. I learn a lot about DSM from the book. I have been through a program like the Roberts program that teaches people how to train personal assistants (PAs) to work for them (66). My style with Personal Assistants was different from David K.’s style but he lays out very well the learning curve most college students with disabilities go through when they start to work with PAs. The name of the book comes from the fact that prisms refract light into different wavelengths. David K. uses the prism as a metaphor to illustrate the way that he views DSM. Usually, people only see one wavelength of light, but when lights pass through a prism people see many different wavelengths. David K. feels like people only see one part of being physically disabled, but there are so many different parts to being physically disabled (i-ii). I liked the book that was dedicated to Philip Edgerley. I did not know him as well as David K and his friends, but this memoir seems like an excellent tribute to Edgerley. David K.’s memoir is a readable and entertaining account of his life with DMS.
Kindle Customer –
An Instant Classic
“Prism” isn’t just a remarkable piece of disability literature, it’s an altogether unique perspective on the experience of growing from a boy into a man. As David evolves over the course of the book, the unfamiliarity of living with Duchene Muscular Dystrophy equally coincides with universal coming-of-age events in a way that is both enlightening and refreshingly human. You will feel the excitement of a first kiss, the stress of adapting to new challenges, the heartbreak of unrequited love, the (often side-splitting) hilarity of college hi-jinks, the warmth of budding friendships, and the triumph of living the best version of one’s life in this absolute page-turner. The best part of David K’s writing style though, is that it keeps you wanting more. I anxiously await the sequel!
Colleen Hogan –
Awesome read!
This book is well written and gives a very personal look into the life of someone with a severe disability. The book is very relatable at times which shows the reader that people with disabilities are just that, people. People who may look different or talk different but we are all people who crave the joys of the human experience. I would highly recommend picking up this book, you won’t regret it!
Michelle –
Great read!!
Prism is a book unlike any other—a quick and enlightening read. David K doesn’t hold back from sharing the realities of life with a severe disability, whether in his home community or through the trials of independent living. Through the whole book his words will put a smile on your face all while making you think. When you finish you’ll be grateful for his words and the Prism into his life he gives.
Moe –
Insightful! A must read for those affected by Duchene’s Muscular Dystrophy and loved ones!!!
Loved the perspective of the author – he tells it all – the good, the bad and the ugly! It opened a world I’ve never seen, which is important as a nurse. Great read – recommend it highly!!!
marrazzo4 –
Wonderful insight into Duchenne and going to college!
With my own son with Duchenne heading to college this came at the perfect time. Love how David K never let adversity hold him down for long. I only with our state had a college program like the one in IL!! Thanks for sharing your story David!
MK –
Authentic Read!
When you’re reading Prism its almost like the author and you are having a one-on-one conversation since it’s such a natural and candid read filled with laughs and poignant moments. I HIGHLY recommend this book to learn more about daily life with Duchenne and the importance of friends.
Kian N. Ardalan –
What an incredible opportunity it was to read David’s memoir about his life with Duschenne Muscular dystrophy.At its core, the book takes you along in an incredibly fluid and easy-to-read narrative from the moment of David’s birth to the present.It would be wrong to say that this book is simply a story about disability (don’t get me wrong, it still is very much that) because it is also a story about a person, trying to get through the daily difficulties that so many of us take for granted in life.It is a story about someone who is very much aware about their situation in life and isn’t afraid to play the Crip Card (a term from David’s college that I loved).This isn’t an inspirational story about someone overcoming their disability (thank goodness), it is a refreshingly candid journey about David learning to go through life with his disability. The story of someone trying to figure out how to ask out a girl, or taking part in bar-crawls and balancing college work.I absolutely recommend this book to anyone who wishes to get a look into what it is like to live with a disability.
Koala –
This book does what the author set out to do; it sheds a light on what living with a severe disability is like. It also highlights the importance of accessibility and what is lacking in other places. It shows what is possible when resources are used in a meaningful way. It speaks of inclusion from the point of view of a man who lives everyday needing the care of others and what it is actually supposed to mean and not from a political viewpoint or buzz word.