The Power of Two: A Twin Triumph over Cystic Fibrosis, Updated and Expanded Edition

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For most people, a diagnosis of cystic fibrosis means the certainty of a life ended too soon. But for Isabel Stenzel Byrnes and Anabel Stenzel, twin girls with the disease, what began as a family’s stubborn determination grew into a miracle. The tragedy of CF has been touchingly recounted in such books as Frank Deford’s Alex: The Life of a Child, but The Power of Two is the first book to portray the symbiotic relationship of twins who share this life-threatening disease through adulthood.Isabel and Anabel tell of their lifelong struggle to pursue normal lives with cystic fibrosis while grappling with the realization that they will die young. Their story reflects the physical and emotional challenges of a particularly aggressive form of CF and is an honest and gripping portrayal of the daily struggle associated with long-term hospitalization, the impact of chronic illness on marriage and family, and the importance of a support network to continuing survival. Born in 1972, seventeen years before scientists discovered the genetic mutation that causes CF, the Stenzel twins endured the daily regimen of chest percussion, frequent doctor visits, and lengthy hospitalizations. But in the face of innumerable setbacks, their deep-seated dependence on each other allowed them to survive long enough to reap the benefits of the miraculous lung transplants that marked a turning point in their lives: “We have an old life—one of growing up with chronic illness—and anew life—one of opportunities and gifts we have never imagined before.” In this memoir, they pay tribute to the people who shaped their experience. These two remarkable sisters have much to teach about the power of perseverance—and about the ultimate power of hope.

ASIN ‏ : ‎ B00O16Q1FM
Publisher ‏ : ‎ University of Missouri
Accessibility ‏ : ‎ Learn more
Publication date ‏ : ‎ October 14, 2014
Edition ‏ : ‎ First Edition, Updated and Expanded Edit
Language ‏ : ‎ English
File size ‏ : ‎ 6.0 MB
Screen Reader ‏ : ‎ Supported
Enhanced typesetting ‏ : ‎ Enabled
X-Ray ‏ : ‎ Not Enabled
Word Wise ‏ : ‎ Enabled
Print length ‏ : ‎ 360 pages
ISBN-13 ‏ : ‎ 978-0826273420
Page Flip ‏ : ‎ Enabled
Best Sellers Rank: #2,134,107 in Kindle Store (See Top 100 in Kindle Store) #48 in Cystic Fibrosis #162 in Genetic Disorders & Diseases #368 in Biographies of People with Disabilities (Books)
Customer Reviews: 4.6 4.6 out of 5 stars 47 ratings var dpAcrHasRegisteredArcLinkClickAction; P.when(‘A’, ‘ready’).execute(function(A) { if (dpAcrHasRegisteredArcLinkClickAction !== true) { dpAcrHasRegisteredArcLinkClickAction = true; A.declarative( ‘acrLink-click-metrics’, ‘click’, { “allowLinkDefault”: true }, function (event) { if (window.ue) { ue.count(“acrLinkClickCount”, (ue.count(“acrLinkClickCount”) || 0) + 1); } } ); } }); P.when(‘A’, ‘cf’).execute(function(A) { A.declarative(‘acrStarsLink-click-metrics’, ‘click’, { “allowLinkDefault” : true }, function(event){ if(window.ue) { ue.count(“acrStarsLinkWithPopoverClickCount”, (ue.count(“acrStarsLinkWithPopoverClickCount”) || 0) + 1); } }); });

8 reviews for The Power of Two: A Twin Triumph over Cystic Fibrosis, Updated and Expanded Edition

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  1. Eric Hyman in SD

    Amazing depiction of their interesting lives
    I agree with what Tiffany wrote before me. I’m also an adult with CF, just hit 30. I had considered writing my own little CF memoir, but these girls did such an awesome job with their vivid depiction of their experiences, thoughts and emotions throughout their lives, they covered it all. Their journey brings you into the world of all stages of CF from everyday maintenance to near death experiences, how it’s changed since the 70’s, the treatments, the pain and the joy in meeting others in this special CF club. As others have said, this book covers so much more. With a German father and Japanese mother, they take you through life as biracial twins in America and Japan, their travels around the world, and the amazing support they found in family and eachother, then much much later boyfriends. Their story is brutally honest about their experiences, and they’ve had some tough ones. What I loved most was this honesty and ability to infuse some funny in their situations and not take themselves too seriously. It’s refreshing. The narration of their mother was hilarious, even though she’s their biggest supporter it seems. My only complaint is I’m jealous they went to CF camp and met Bob Flanagan, the camps were gone by the time I knew they existed.Brilliant girls, thank you!

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  2. Robin Modlin

    Thank you for giving me a way to share with my family………
    Having known and loved Ana and Isa for at least 15 years and being a mom of one of their close friends who is an adult with CF I am so grateful to them for writing this book. The raw honesty and intimacy of sharing their lives is unusual. We live with CF in so many hidden ways. It is behind closed doors where much of the struggles occur whether being the disease processes, treatments or personal grieving. Being able to share a true picture of what it is like to deal with CF or any life threatening chronic illness is difficult at best. You know when people ask, how is it? We usually say, “fine”. But the story about CF is far more complicated than, “fine”. Thank you Ana and Isa for telling your story that is so readable so that I can share it with my family. Perhaps this will give them a glimpse into our lives that is so hard to share in words other than, “fine”. May it be read widely and a greater understanding into the lives of those that live with these challenges be better understood.

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  3. MHBenz

    Transparent and Touching!
    This may be one of the clearest views into the truth of what life is like with Cystic Fibrosis. Ana and Isa are candid, heartfelt, and funny as they share their struggle together with CF. This is a great book about two incredible and wonderful sisters and I can not recommend it enough!

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  4. Mary Helen Evans

    cystic fibrosis- A Twin Triumph
    This is a compelling book. I bought it because my son has struggled with cystic fibrosis and also had a lung transplantand has been in touch via email with Ana and Isa. This book is one that will surprise many people. It will be of value to paramedics and health workers as well as people interested in challenges both health and inter-racial, and the general public. What remarkable people and how honestly they talk about their experiences. There is no glossing over the difficulties but their devotion to each other and their family and their determination to stay positive is very real to the reader.Helen Evans

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  5. C.Riddle

    Inspirational
    This book is extremely inspirational and it was great to connect to others with CF and it truly motivated me to take better care of myself. I pray one day SOON there will be a cure for CF. I highly recommend reading this book!

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  6. Jackie

    inspiring story of courage and love
    This story brought me to tears and left me smiling. Isa and Ana are talented storytellers and I would highly recommend this book for anyone – especially those wanting to know more about cf or transplants.

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  7. camsmom2009

    parent of CF teenager
    I purchased this book based on reviews. I found it to be very depressing. Perhaps since my hnousehold lives with this devastating disease daily, it was hard to take. Very realistic, and not many good things. My idea was for my teenager to read something offering hope in a positive manner. The book was not enjoyable reading to me or to my teenager. Too depressing by far. Maybe good for someone wanting to know about the disease, though. Maybe not.

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  8. Robert J. Moss

    Inspiration to Say the Least
    I personally know the authors who are the best of the best. Two more intelligent, thoughtful, and brave women do not exist.

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    The Power of Two: A Twin Triumph over Cystic Fibrosis, Updated and Expanded Edition
    The Power of Two: A Twin Triumph over Cystic Fibrosis, Updated and Expanded Edition

    $18.70

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